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school STATION, Tex. KBTX — 672018 – Erika Norman always dreamed of having a baby boy.
Thirteen weeks into her pregnancy, doctors advised her that her son, Kashmere, had trisomy 13, also called Patau syndrome. or not it’s a chromosomal condition that reasons severe intellectual incapacity and actual defects.
Pregnant women can get a blood examine executed to look if their child has the ailment.
4da1a46ec20cf93ee5c846a51e04f0ed,I had no theory what it was but I discovered about it and it changed into devastating because in case you look it up online it’s injurious, and it just become no influence, you be aware of, it’s what i was advised, however God works in mysterious ways,” talked about Norman.
doctors informed her that her son had a one % possibility of survival.
4da1a46ec20cf93ee5c846a51e04f0ed.”i was advised he would live for minutes after he was born perhaps even hours but definitely now not weeks and months, so that they gave me no hope,” said Norman.
however Erica talked about she can do anything to help her baby boy are living a normal existence.
4da1a46ec20cf93ee5c846a51e04f0ed.”in the event that they make it past a yr, we simply should play it via ear– it’s no longer suitable to lifestyles, so or not it’s a scary disease but we are only keeping it in God’s fingers,” mentioned Norman.
After months of searching for answers, Erika and her family unit found a toddlers’s clinic in Philadelphia that specializes in treating children with the rare ailment.
4da1a46ec20cf93ee5c846a51e04f0ed.”They want to work with him and work with his blood sugar and do all types of principal things with him so or not it’s a trisomy neighbourly clinic, so they are very optimistic and they see decent issues that they may additionally do with him”
For now, Kashmere has a unique feeding tube and has to rob medicine twice a day.